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PAGINAS EN ESPAÑOL

 

Paginas personales

Página Web de Jose M. Pulido Información sobre FQ, tanto en español como en inglés.
IX Congreso Latino Americano de Fibrosis Quística. En conjunto con el 2º Congreso Argentino de Neumología Pediatrica.
Fibrosis Quistica, mantenimiento a cargo del Dr. Angel E. González Menéndez.

Asociaciones Españolas de Fibrosis Quística

split.gif (73 bytes) Asociación Catalana contra la   Fibrosis Quística
split.gif (73 bytes) Asociación Madrileña contra la Fibrosis Quística
split.gif (73 bytes) Asociación Valenciana contra la Fibrosis Quística

Organizaciones Nacionales relacionadas con la Fibrosis Quística

split.gif (73 bytes) COCEMFE Confederación Coordinadora Estatal de Minusválidos Físicos de España.

Revistas Médicas


split.gif (73 bytes) El Centro Cochrane Español: El principal objetivo de la CC es preparar, mantener y divulgar revisiones sistemáticas y actualizadas de la evidencia científica.
split.gif (73 bytes) Grupo Cochrane de Fibrosis Quística : El Centro Cochrane está realizando una revisión sobre la Fibrosis Quística.
split.gif (73 bytes) Revista de Salud Pública de México
split.gif (73 bytes) Revista Panamericana de Salud Pública

Páginas relacionadas con el Trasplante de Pulmón


split.gif (73 bytes) Página web de la Organización Nacional de Transplante de Organos
split.gif (73 bytes) Página web del Grupo de Transplante Pulmonar del Hospital La Fe de Valencia.
split.gif (73 bytes) Página web de la Asociación Valenciana de Trasplates de Pulmón (AVTP)
split.gif (73 bytes) Página web de la Asociación de Trasplantados de Corazón y Pulmón de Asturias (ATCP-Asturias)
split.gif (73 bytes) Donación y Trasplante de Organos y Tegidos: Hospital General Universitario de Alicante. Esta página tiene información sobre los trasplantes de organos, información de cursos, noticias, del proceso de la donación y el trasplante de organos, de la Organozación Nacional de Trasplantes.

Páginas médicas relacionadas con la Fibrosis Quística

split.gif (73 bytes) Web PEDiátrica infantil: Web PEDiátrica ha sido elaborada para 2 grupos de personas: Para PEDIATRAS (sección de Medicina Infantil) y para PADRES (Información para Padres). Incluye información para padres sobre Fibrosis Quística. Realizada por Julio Guerrero Fernández.

Hospitales e investigación

split.gif (73 bytes) Secretaría de Salud de Mexico
split.gif (73 bytes) Corporació Sanitaria Parc Taullií

 

PAGINAS EN OTROS IDIOMAS

 

Páginas Personales

 

split.gif (73 bytes) Cystic fibrosis Web: The mother of all CF sites. Ages ago, when I started swimming around the Web, this was the only place dedicated to CF. Now that the list has become longer, it still deserves the number one spot.
split.gif (73 bytes) Cystic Fibrosis 101 (Canada) A collection of over 250 links all related to cystic fibrosis.
split.gif (73 bytes) Muco Web, Jean Charles Favre home page (Switzerland) Cystic Fibrosis and transplantation in french; with links in many languages.
split.gif (73 bytes) Sarah's Walter Cystic Fibrosis home page
A site created by an adult with CF who also happens to be a doctor. Contains both personal experience and professional information. Also includes the Cochrane Collaboration CF Group home page, and some abstracts and slide presentations of her research. Her autobiography is also online.

Organizaciones Nacionales

split.gif (73 bytes) ABRAM. Associação Brasileira de Assistência a Mucoviscidose.(Brasil)
split.gif (73 bytes) Association Française de Lutte contre la Mucoviscidose (Francia)
split.gif (73 bytes) Cystic Fibrosis Foundation (USA)
split.gif (73 bytes) Cystic Fibrosis Research Incorporate CFRI (USA)
California based nonprofit organization dedicated to educating people about CF and funding research that hopefully will lead to a control or cure of CF. It's the only CF organization in the United States which sponsors a conference for laypeople on CF.
In 1995 IACFA and CFRI held a joint conference in Palo Alto, and this very successful event will be repeated in 1999 in San Jose (CA).
split.gif (73 bytes) Canadian Cystic Fibrosis Foundation (Canada)
split.gif (73 bytes) Fondation canadienne de la fibrose cystique (Canada)
split.gif (73 bytes) Site officiel du Comité Provincial des Adultes Fibro-Kystiques - ACFCQ (Canada)
The ACFCQ is a non-profit organization representing Quebec's CF adults. This site offers information and exchanges for CF adults of Quebec and elsewhere as well as for all those who are affected directly or indirectly by cystic fibrosis.
It's both in french and english. Watch out the question of the month and try to write your point of view.
split.gif (73 bytes) Cystic Fibrosis Association of Western Australia
split.gif (73 bytes) The Cystic Fibrosis Association of Victoria (Australia)
split.gif (73 bytes) The Cystic Fibrosis Cyber Campus, previously CF association of Ireland.
split.gif (73 bytes) The Cystic Fibrosis Trust Home Page (UK)
split.gif (73 bytes) Riksförbundet Cystisk Fibros (Sweden) Currently it's only in swedish.....
split.gif (73 bytes) Mukoviszidose e.V. (Germany)
split.gif (73 bytes) CF-Selbsthilfe Kvln e.V. (Germany)
split.gif (73 bytes) Nederlandse Cystic Fibrosis Stichting (Netherland)
split.gif (73 bytes) Belgische vereniging voor strijd tegen mucoviscidose
split.gif (73 bytes) Association belge de lutte contre la mucoviscidose (Belgium) The Belgian CF Association.
split.gif (73 bytes) Lega Italiana delle Associazioni per la lotta contro la Fibrosi Cistica (Italy) Includes a list of italian CF centers, clinics and regional associations.
split.gif (73 bytes) The Cystic Fibrosis Association Address Book Homepage
Includes a list of CF clinics around the world.
split.gif (73 bytes) National Organization for Rare Disorders, Inc. - NORD (USA)
The National Organization for Rare Disorders (NORD) is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
split.gif (73 bytes) Second wind (USA)
This web site is concerned exclusively with lung transplantation.
Second Wind is run by lung transplant recipients and is intended as a support group for people who have had, or are waiting for, a single-, double-, or heart-lung transplant.
split.gif (73 bytes) Keuhkovammaliitto - (Finland)
Association of the Pulmonary Disabled (in finnish and english)

Revistas Médicas

 

split.gif (73 bytes) Grupo Cochrane de Fibrosis Quística :  The Cochrane Collaboration is an international network of individuals and institutions committed to preparing, maintaining, and disseminating systematic reviews of the effects of health care.
split.gif (73 bytes) New England Journal of Medicine
split.gif (73 bytes) The Lancet
split.gif (73 bytes) British Medical Journal
split.gif (73 bytes) Pediatrics
split.gif (73 bytes) Science
split.gif (73 bytes) Scientific American
split.gif (73 bytes) Canadian Medical Association Journal
split.gif (73 bytes) Morbitidy and Mortality Weekly Report. Weekly
split.gif (73 bytes) Morbidity and Mortality Weekly Report. Recommendations and Reports
split.gif (73 bytes) Emerging Infectious Diseases
split.gif (73 bytes) Annals of Internal Medicine
split.gif (73 bytes) Internet Journal of Emergency and Intensive Care Medicine
split.gif (73 bytes) Publicaciones de la Asociación Médica Americana:
split.gif (73 bytes) Archives of: Internal Medicina, Dermatology, Family Medicine, Ophthalmology, Neurology, General Psychiatry,
split.gif (73 bytes) Otolaryngology, Surgery, Pediatrics, JAMA, HIV.
split.gif (73 bytes) Publicaciones de la editorial Mosby: American Heart Journal, American Journal of Obstetrics and Gynecology, Annals of Emergency Medicine, Gastrointestinal Endoscopy, Journal of the American Society of Echocardiography, Journal of Vascular Surgery, Otolaryngology - Head and Neck Surgery, The Journal of Allergy and Clinical Immunology, The Journal of Pediatrics

Páginas relacionadas con el Trasplante de Pulmón

split.gif (73 bytes)  ISHLT Home Page
split.gif (73 bytes) TransWeb - Transplantation and Donation
split.gif (73 bytes) Second Wind Lung Transplant Association, Inc.
split.gif (73 bytes) AMERICAN SHARE FOUNDATION
split.gif (73 bytes) Transplant Square Homepage

Varios

split.gif (73 bytes) Orphanet : Base de datos enfermedades raras.

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