Página
Web de Jose M. Pulido Información sobre FQ, tanto en español
como en inglés.
IX
Congreso Latino Americano de Fibrosis Quística. En
conjunto con el 2º Congreso Argentino de Neumología
Pediatrica.
Fibrosis
Quistica, mantenimiento a cargo del Dr. Angel E. González
Menéndez.
Asociaciones
Españolas de Fibrosis Quística |
Asociación Catalana
contra la Fibrosis Quística
Asociación
Madrileña contra la Fibrosis Quística
Asociación
Valenciana contra la Fibrosis Quística
Organizaciones
Nacionales relacionadas con la Fibrosis Quística |
COCEMFE Confederación
Coordinadora Estatal de Minusválidos Físicos de España.
El
Centro Cochrane Español: El principal objetivo de la CC
es preparar, mantener y divulgar revisiones sistemáticas y
actualizadas de la evidencia científica.
Grupo
Cochrane de Fibrosis Quística : El Centro Cochrane está
realizando una revisión sobre la Fibrosis Quística.
Revista
de Salud Pública de México
Revista
Panamericana de Salud Pública
Páginas
relacionadas con el Trasplante de Pulmón |
Página
web de la Organización Nacional de Transplante de Organos
Página
web del Grupo de Transplante Pulmonar del Hospital La Fe de
Valencia.
Página web de la Asociación
Valenciana de Trasplates de Pulmón
(AVTP)
Página web de la Asociación de
Trasplantados de Corazón y Pulmón de Asturias
(ATCP-Asturias)
Donación y
Trasplante de Organos y Tegidos: Hospital
General Universitario de Alicante. Esta página tiene
información sobre los trasplantes de organos, información de
cursos, noticias, del proceso de la donación y el trasplante
de organos, de la Organozación Nacional de Trasplantes.
Páginas
médicas relacionadas con la Fibrosis Quística |
Web PEDiátrica
infantil: Web PEDiátrica ha sido elaborada para 2 grupos
de personas: Para PEDIATRAS (sección de Medicina Infantil) y
para PADRES (Información para Padres). Incluye información
para padres sobre Fibrosis Quística. Realizada por Julio
Guerrero Fernández.
Hospitales
e investigación |
Secretaría de Salud de
Mexico
Corporació
Sanitaria Parc Taullií
Cystic fibrosis Web: The
mother of all CF sites. Ages ago, when I started swimming
around the Web, this was the only place dedicated to CF. Now
that the list has become longer, it still deserves the number
one spot.
Cystic
Fibrosis 101 (Canada) A collection of over 250 links all
related to cystic fibrosis.
Muco
Web, Jean Charles Favre home page (Switzerland) Cystic
Fibrosis and transplantation in french; with links in many
languages.
Sarah's
Walter Cystic Fibrosis home page
A site created by an adult with CF who also happens to be a
doctor. Contains both personal experience and professional
information. Also includes the Cochrane Collaboration CF Group
home page, and some abstracts and slide presentations of her
research. Her autobiography is also online.
Organizaciones
Nacionales |
ABRAM. Associação
Brasileira de Assistência a Mucoviscidose.(Brasil)
Association
Française de Lutte contre la Mucoviscidose (Francia)
Cystic
Fibrosis Foundation (USA)
Cystic
Fibrosis Research Incorporate CFRI (USA)
California based nonprofit organization dedicated to educating
people about CF and funding research that hopefully will lead
to a control or cure of CF. It's the only CF organization in
the United States which sponsors a conference for laypeople on
CF.
In 1995 IACFA and CFRI held a joint conference in Palo Alto,
and this very successful event will be repeated in 1999 in San
Jose (CA).
Canadian
Cystic Fibrosis Foundation (Canada)
Fondation
canadienne de la fibrose cystique (Canada)
Site
officiel du Comité Provincial des Adultes Fibro-Kystiques -
ACFCQ (Canada)
The ACFCQ is a non-profit organization representing Quebec's
CF adults. This site offers information and exchanges for CF
adults of Quebec and elsewhere as well as for all those who
are affected directly or indirectly by cystic fibrosis.
It's both in french and english. Watch out the question of the
month and try to write your point of view.
Cystic
Fibrosis Association of Western Australia
The
Cystic Fibrosis Association of Victoria (Australia)
The
Cystic Fibrosis Cyber Campus, previously CF association of
Ireland.
The
Cystic Fibrosis Trust Home Page (UK)
Riksförbundet
Cystisk Fibros (Sweden) Currently it's only in swedish.....
Mukoviszidose
e.V. (Germany)
CF-Selbsthilfe
Kvln e.V. (Germany)
Nederlandse
Cystic Fibrosis Stichting (Netherland)
Belgische
vereniging voor strijd tegen mucoviscidose
Association
belge de lutte contre la mucoviscidose (Belgium) The
Belgian CF Association.
Lega
Italiana delle Associazioni per la lotta contro la Fibrosi
Cistica (Italy) Includes a list of italian CF centers,
clinics and regional associations.
The
Cystic Fibrosis Association Address Book Homepage
Includes a list of CF clinics around the world.
National
Organization for Rare Disorders, Inc. - NORD (USA)
The National Organization for Rare Disorders (NORD) is a
unique federation of voluntary health organizations dedicated
to helping people with rare "orphan" diseases and
assisting the organizations that serve them. NORD is committed
to the identification, treatment, and cure of rare disorders
through programs of education, advocacy, research, and service.
Second
wind (USA)
This web site is concerned exclusively with lung
transplantation.
Second Wind is run by lung transplant recipients and is
intended as a support group for people who have had, or are
waiting for, a single-, double-, or heart-lung transplant.
Keuhkovammaliitto
- (Finland)
Association of the Pulmonary Disabled (in finnish and english)
Grupo
Cochrane de Fibrosis Quística : The Cochrane
Collaboration is an international network of individuals and
institutions committed to preparing, maintaining, and
disseminating systematic reviews of the effects of health care.
New
England Journal of Medicine
The
Lancet
British
Medical Journal
Pediatrics
Science
Scientific
American
Canadian
Medical Association Journal
Morbitidy
and Mortality Weekly Report. Weekly
Morbidity
and Mortality Weekly Report. Recommendations and Reports
Emerging
Infectious Diseases
Annals
of Internal Medicine
Internet
Journal of Emergency and Intensive Care Medicine
Publicaciones
de la Asociación Médica Americana:
Archives
of: Internal Medicina, Dermatology, Family Medicine,
Ophthalmology, Neurology, General Psychiatry,
Otolaryngology,
Surgery, Pediatrics, JAMA, HIV.
Publicaciones
de la editorial Mosby: American Heart Journal, American
Journal of Obstetrics and Gynecology, Annals of Emergency
Medicine, Gastrointestinal Endoscopy, Journal of the American
Society of Echocardiography, Journal of Vascular Surgery,
Otolaryngology - Head and Neck Surgery, The Journal of Allergy
and Clinical Immunology, The Journal of Pediatrics
Páginas
relacionadas con el Trasplante de Pulmón |
ISHLT Home Page
TransWeb
- Transplantation and Donation
Second
Wind Lung Transplant Association, Inc.
AMERICAN
SHARE FOUNDATION
Transplant
Square Homepage
Orphanet : Base de datos
enfermedades raras.
|